On Exorex and a Plumbing Metaphor
I was diagnosed with psoriasis about 3 ½ years ago. I have the type called Guttate. At first, I had one small spot on my leg. Then within four months, I had lesions from the top of my head to my ankles. I went to dermatologists and received three different prescriptions that totaled around $250. The prescriptions for my scalp worked perfectly. Within a month all lesions were completely cleared up on my head and forehead. Even to this day lesions pop up on my head infrequently. However, none of the prescriptions improved the rest of me.
Due to the cost, I stopped taking the meds after 6 months. A couple of months later, I received my first package of Exorex. After 5 to 6 months of use, all lesions disappeared from my body. But this medication has no affect on my legs. To this day, my legs between my knees and ankles are covered with lesions. It is so frustrating!
I am thankful for the psoriasis clearing I have had. It is still unnerving to be a professional woman in a business suit trying to make an impression and only have attention focused on your legs. I usually just ask if they are curious about my legs.
Thank you for your web site. It is humorous and informative. I will become a constant visitor. -Angee P.
Ed's Response: Sounds like you're clearing from the top down in stages, Angee. I guess that's better than not clearing at all! There's something about the "greater extremities"legs, ankles, feet especially. My Methotrexate therapy is battling hardest on these areas, too ... and having the least success there.
I can't help but wonder if this has something to do with the simple physics of plumbing. When we consider the circulatory system a combined "fresh water/sewer" system, it is easier to understand complications and inefficiencies cropping up at the furthest reaches of that system. For all practical purposes the system starts in the chest, where the heart pumps and the lungs aerate the blood. Then, close by, in the liver and kidneys wastes are extracted from the blood and assorted treatments (biochemicalshormones and such) are inserted. Much of the P literature talks about accelerated skin growth requiring intensified blood supply (hence the red lesions), but not much is written about the waste products that this accelerated growth must generate and how well the intensified blood flow to the area handles these. Could it be that our lesions at these furthest reaches are hard to placate because the blood supply is less efficient, less robust? I think of such weird things perhaps because I live at a furthest reach of a city water system. I am reminded, every time I open a tap, about the inefficiencies associated with being at the end of this particular line of plumbing. Then I see the enduring red lesions on my toes and believe I understand their predicament.... Some might think my sense of sympathy, of comradeship, with my toes is either an outrageous case of narcissism or a mild mental illness. But as a fellow flaker, I'm sure you're totally sympathetic. Aren't you?
I am happy to hear you have experienced good results with Exorex. As you probably know, within our community this non-prescription product is either loved or hated. I have received equal amounts of email from people who claim it has done nothing for them and people, like yourself, who swear by it. To me, such divided reports underscore the complexity and diversity of our disease more than they say anything about the product, Exorex. It makes me suspect that the potion's effectiveness has at least something to do with what triggers our P. We know that our individual triggers are quite varied and I suspect if you investigate two flakers, one who responds well to Exorex and one who does not, you will also discover their P triggers are quite different. I think this may be true of many other non-prescription palliatives as well as dietary regimens and supplement therapies. But we have no handle on P triggers, no way to identify and group or categorize triggers or trigger types. There really is no way for the manufacturers of Exorex to know about and advertize only to the appropriate population of flakers. As a consequence, many of us will fruitlessly try the product and only some of us will find it works. Rather than getting angry because I am one of those who try the expensive stuff and find it does nothing for me, perhaps I should resolve myself to the lesser satisfaction of knowing that my purchase of the product at least contributed to keeping it affordable for those whose P it does improve. (And no, the manufacturers of Exorex did not pay me to explicate that Panglossian BS ... so perhaps I should bill them.)
Anyway, Angee. I'm glad you have found us and look forward to your continuing correspondence. -Ed