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Membership Delayed Discovery
I was pleased
to find your website. I will
be coming back to check out more psoriasis stories.
about three years ago on the soles of my feet and around the toenails.
Doctors thought it was a fungus and treated it accordingly.
Nothing helped. I had
more creams and expensive fungus pills than you can imagine.
After about one and a half years of that, my feet started clearing
and within a month, my feet cleared and it went directly to the palms of
my hands. I also started to
develop lesions on my elbows, knees and scalp.
It is now
primarily on the palms of my hands. I
develop new skin about every 5 days on my palms.
When I first went to
the doctor I had complete faith in him and was certain we could overcome
this nasty stuff. I quickly
learned that he would only keep trying creams, lactic acid, etc. and would
not refer me to a derm. This
is because I belong to an HMO (Health Maintenance Organization) and they
don't want the doctors to refer something like this to a specialist.
Nevertheless, I finally got a referral about six months ago. I
started getting on the internet and "getting involved."
The derm did a
biopsy. I just got the results
back and he said that it shows eczema.
I showed him my elbows, etc. and he said maybe I have BOTH [eczema
and P]! I do have PA, but not
really bad. I now put a urea
acid cream on my palms followed by Clobetasol Propionate.
I also wrap at night. He
wants me to do this for one month and if I do not clear we may go to
Soriatane. I have been reading about
Soriatane at FlakeHQ. Pretty
scary. I will keep in touch
and keep reading. By the way,
loved the things "not to say." -Sue S.
Response: Glad you liked the Don’t Say This list, Sue.
and progression of what sounds like nail P and Palmar Pustular P morphing
into a more typical plaque P is certainly not unusual, nor is your medical
approach (so far). The
topicals — including the steroid, clobetasol propionate — enhanced by
occlusion at night, for a trial period, followed by a possible migration
to the systemic medicine, Soriatane, is all pretty standard practice.
the fact that you wasted so much time treating “fungus” — because of
the nail P, no doubt, and your HMO membership — is also not surprising.
(For more sad HMO stories, search on “HMO” from the home
reading, Sue. And keep in
touch by dropping us a line and an update on your situation every now and
again. If your derm does move
you to a systemic — Soriatane, Methotrexate, Cyclosporine — we’ll be
interested to hear how you fare. Don’t
be too worried. The trick is
not to compromise on the regular checkups and blood work.
If your body reacts badly to the systemics, it will let you know
and all the early signs, if heeded, will let you change your regimen
before any permanent damage is done.
recommendation: If you
haven’t already, join the National Psoriasis Foundation.
The cost is whatever you care to donate, and the benefits are a
wealth of information no flaker should live without.