Sep-Oct '08 | briefing | mail | interviews | articlespsorchat |  don't say this | flaker creativity | flakers' jargon | other places | archives | send mail | ed dewkesearch | acknowledgments | legal stuff | Flake: Confessions of a Psoriatic  | 2008 Ed Dewke

Late Coming P-Arthritis Wreaking Havoc
from Cindy L.

Ed: Just wanted to say thanks for your website. I've only become aware of Psoriatic Arthritis in the last few years, because it's destroying my hands. I've had P in my nails since I was a teen, and never thought much of it, just an annoyance. But apparently, in getting old, the problem is progressing.

It's been very frustrating getting a doctor to even take my situation seriously. No doubt the fact I'm poor and only have Medicaid makes a big difference. The more research I do, and see the destructive potential of this disease, the more it scares me. The pain has already rendered me disabled; it's affecting my feet, knees, hips, back, hands, etc. Never knew it caused eye pain until recently, but I get to enjoy that as well.

Anyway, just thought you'd like to know your website is appreciated. -Cindy L.

*****

Ed’s Response: Nice to hear from you Cindy; glad you like our FlakeHQ community.  Sorry to hear about P-arthritis being added to your burden. Count me among your shipmates on that particular voyage.

Nail P is often an indicator that an individual may have a proclivity for P-arthritis. If a rheumatologist associates your arthritis presentation as more like rheumatoid than osteoarthritis, and if you have a history of nail psoriasis, then the diagnosis of psoriatic arthritis is made with confidence.

With regard to the eye pain, here is a good web reference on the topic: Psoriasis and Your Eyes (About.com).

If your doctor hasn’t mentioned biologic medicines for your P and PA, you should probably ask. Enbrel, Humira, Remicade and others in the approval pipeline have demonstrated effectiveness for both skin P and PA. More importantly, they can slow or arrest permanent joint damage from the PA.

Biologics are expensive hence tough to use without good insurance coverage. Enbrel has been around the longest and is covered in some circumstances, I understand, by Medicaid and Medicare. Not surprisingly, you’re more likely to find financial assistance if a doctor will state that your condition has disabled you or is in the process of disabling you. You may find some of the links below helpful.

Patient insurance and financial assistance information:

        Remicade: http://www.centocoraccessone.com/

        Enbrel:  http://www.enlivenservices.com/psa/

        Remicade:http://www.remicade.com/remicade/global/getting_support.html

Good luck to you, Cindy.  -Ed

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