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Fear of Biologics
from Courtney

You know, I think maybe there is some fear of the biologics, especially for the paranoid types like me. Probably, I do not know enough about it, but also I think that there is some fear with any new drug. Do the studies really reveal the long term effects of the drug? Perhaps I should research it some for my own benefit and peace of mind. I guess this disease is so stubborn and persistent that we all have to be stubborn and persistent just to barely keep up with it.

Recently, I've been going to an acupuncturist and have been trying herbs to help my psoriasis. She had me try one (a three day supply), I swear my psoriasis calmed down a lot, but now she cannot find the herb!  So, I feel kind of like shit again, but that’s as usual, I guess.  I’ll let you know when I find the cure.

In other words, give me some time and I'll be crawling on my hands and knees to the biologics.  Hey, I can't give up all pessimism, the fall is too far.

Anyway, I'm glad to hear you are doing so well. This just might work out for the best. I will definitely be looking further into it and hoping that it works out well for you. Of course, I don't know what you're going to do with this damn website when you are psoriasis free! -Courtney

*****

Ed’s Response:  Hi Courtney.  Good to hear from you.  Biologics of the kind flakers are taking these days have, in several cases, been in use for several years longer than they've been approved for P, but they were prescribed for other ailments (e.g., other kinds of arthritis). 

I agree with you that it's a little scary NOT KNOWING what the long term consequences of these drugs might be.  Genentech, the manufacturer of Raptiva, advocates its use for severe P forever.  If it works, keep on taking it as long as it continues to work, even if that means for the rest of your life.  This indicates a high degree of confidence on their part that adverse effects aren't serious — or — I suppose it could mean they know it's not going to work “forever” for anybody(!).

I've heard from “insiders” that what we know about the immune system is still on the “climbing side” of the curve.  The huge disparity between people with P that ARE and AREN'T helped by any particular biologic is a thorny question mark.

Regarding your current experience with an acupuncturist....  Did you ever read my account of a similar experience? Here's a link that will get you there:  http://www.flakehq.com/flakexc.htm#acupuncture.

And finally, with regard to what I might do with FlakeHQ.com when P is cured.... It is a proposition that remains so unfathomable to me, today, that I'm unable to plan for it.  <wink> -Ed

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