|Sept-Oct '04 | briefing | mail | don't say this | flakers' jargon | flaker creativity | articles | other places | archives | send mail | ed dewke | legal stuff | order | search | PsorChat | PsorChat Review | ©2004 Ed Dewke|
7 Months Soriatane Still Working
I just wanted to take some time to post an additional follow up to
my Soriatane journey. After having been on this medication for the better
of 7 months, all is still well. I
think now to compare PRP to Psoriasis isn't all that fair because I have
read more and more about the two and the common denominator is basically a
skin irritation at its purest form. Other than that the two maladies are
fairly different in structure, cause, and treatment. I can see why certain
things will work for one and not the other, but I can also accept that the
side effects can be too much when you see nothing close to what I have in
regards to results.
derm wants me to get through the season change and then we will look at
going every other day. I have
also adopted a workout regimen (a) because I need to and (b) so I can
hopefully keep cholesterol in check as well.
So far so good. I have not adhered to the lack of alcohol
suggestion like I should —BUT, I don’t drink much in comparison
anyway. Having said that, Soriatane hasn't changed my life in some ways
all that much.
I recently went to Myrtle Beach on my family's annual trip and the sun
sensitivity is really the only weird thing that I am still adjusting to. I
have always wanted to use the sun to slow the skin shedding that I have
had for years. Now, for the
first time that I can remember, I used 30SPF sunscreen religiously and
still got red. I'll learn to deal with it.
- I hope you can get back to using what works for you. The freedom that I
have missed for nearly 20 years is wonderful to have and I hope to never
take it for granted. Simple pleasures of wearing black clothes, short
sleeves, and flip flops mean the world to me now and I pray the same for
you and all that read your site. Your site has helped me to see that I was
never alone and it never mattered what I hid in public.
I could — and can — always be a part of a forum here that could
care less about those red patches on my skin.
That means the world to so many. Thanks again. –Adam H.
Response: Thanks for the
update, Adam. As usual, it is
good to hear from someone who continues to have good results from a
treatment. I don’t know that
much about PRP, but I know maintaining positive results with any regimen
treating P is difficult. It’s
kind of become a truism for psoriatics that anything and everything is
going to “wear out.”
frustrating that we’re not quite sure why that is.
Anyway ... Your email sounds like a “goodbye,” which I sincerely hope is not the case. We will want to continue to hear how you’re doing, Adam. You may come to be regarded as a “graduate” — but never a stranger.Stay well! -Ed