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Miraderm to Enbrel
Ed, Thought I would check in with you and give you my latest update.
I joined a P chat group on yahoo back in May of this year. There
was this rage going on about Miraderm,
so you know how we are about trying something new to cure our P.
I emailed them. Low and behold I got an email back she was going to
send me enough free product to clear up my P. She did so, out of Canada,
to the tune of about $400.00 worth.
I started it in May. I was using it faithfully up until about the 3rd week
in July. Woweeee. The whole
thing backfired on me literally. It was working wonderfully on my elbows.
My rear end didn't like it though. I couldn't sit on it for a week, let
alone go to work. Called my derm of 15 years told her what was going on.
She was afraid there was so much salicylic acid in the stuff it would
cause an infection on such tender skin. No kidding!
Well you know it is my fault for not following the Miraderm
instructions. Put the stuff on then
cover it with something like Vaseline.
More isn't always better. Needless
to say the skin on my rear end was peeling twice a day.
the derm says lets try Enbrel. I
have been taking the Enbrel since July 1. I can sit on my rear end again.
The P has gone away. No scars
or anything, have done 32 (25mg) shots to date. Two (25mg) shots twice per
week. My elbows were clear in the first week. They hadn't been clear in
two years. July 21st my rear end was clear, It hadn't been in two years
either. Thighs took another two weeks. I can't believe my new found skin.
So am taking advantage of the new skin, as long as it lasts, or the
insurance runs out. I asked my boyfriend of 5 years if he minded that I
walk around bare naked? He said "you go right ahead, just don't go
feel like showing everyone my A _ _. But they wouldn't know how bad it was
before the Enbrel. My dad said that it was such a good thing about my
skin. Because he is not around to take me to the hospital when the P gets
so bad it hurts. No more Pity Parties for me.
you are doing well. I know that Enbrel didn't work this great for
Response: Sad to hear about
your lack of success with Miraderm. Though
salicylic acid is an active ingredient, there are supposed to be other
agents that promote healing...
The only ingredient in this formulation that is classified as a drug by the FDA is salicylic acid, which works by promoting exfoliation of the dry scaly patches associated with psoriasis. However, the salicylic acid is formulated in a base containing anti-inflammatory agents that work naturally to restore the skin to a healthy state so that the body can heal and repair itself in such a way as to prevent the rebound effect that often occurs with hydrocortisone or other typical psoriasis drugs.
like whatever it was you did or didn’t do worked to compromise the
benefits of these “other agents.”
the other hand, your Enbrel experience appears to be cause for
celebration. Not only is this
biologic working for you, it’s working fast and it’s working at the
normal dosage (many others require double the dosage to get results
similar to yours).
observation about my Enbrel experience is sound, I think.
It probably would be good for me to lay off the systemics for
awhile and give Enbrel another try. (One
thing we’d do is get me started at double your dosage, then reduce the
dose once a positive effect is obtained.)
Before I try Enbrel again, though, I’m going to try Raptiva. Hopefully, by the next update of FlakeHQ, I’ll have something to report. -Ed