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Side Effects Too Awful to Tolerate
I am 49 and have been dealing with psoriasis for 45 years.
For the last 15 years I have been on methothrexate and Neoral
(cyclosporine), both with very good results. But after changing health
plans — leaving Kaiser who was good to me for so long — I went to an
outside doctor and was prescribed Soriatane. What a nightmare!
it for 2 months I stopped taking it, but the effects are still lingering.
While taking it my skin peeled so bad that I could sweep me off the
floor in heaps. I could see my
skin on the floor wherever I went. My
lips were so chapped there wasn't enough Chapstick; and my hair started to
fall out. My eyes were bloodshot
(Visine didn't help). All this
and the P was still there.
About when I
could see some improvement in my P I decided to stop taking Soriatane.
My hair was thinning badly (and, before, I had lots of beautiful
hair). My daughter wanted to
know if I was smoking weed because my eyes were soooo bloodshot.
It has been
3 months since I stopped. My psoriasis is worse than ever.
And my hair? Well,
I’m balding to the point I need a wig.
The doctor says I can continue losing my hair for a year!
Well, I am
starting a new treatment that my insurance has okayed to pay! Amevive.
Response: You deserve a break,
Shirley, and I hope Amevive provides it for you.
Read All About Taking Amevive
in this month’s mail for an inspiring report.
All of the
symptoms you describe from your Soriatane experience are acknowledged,
even on the Soriatane
web site. Based on what
we’ve heard here, the severity of these side effects varies a lot.
You obviously were effected severely.
(But surely you’ll get your hair back in less than a year!?)
Here’s hoping Amevive proves to be a totally different experience for you. -Ed