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Zumbusch is Sharing His P
Hi Ed: My name is
Sharon D. and I was just told that I have Von Zumbusch psoriasis (head to
toe with exception of the face). Just
think what a thrill it was to come back from a cruise and think you had
contact dermatitis (pool and hot tub culprits) and in three short days
take yourself to the emergency room and end up in the hospital!
Yee Ha. This happened
at the end of June.
Anyway, the internal
med folks in the Emergency room and on the floor had no clue what was
wrong and I sure didn't have any idea.
I was lucky to have an older derm Doc show up and take a stab at
Pustular and Erythrodermic Psoriasis.
This was not fun! He
did a biopsy on one of the pustular presentations and confirmed his guess
two days later.
To say that I was not
thrilled would be an understatement.
So, now I'm on Neoral
[cyclosporine] and the pustular symptoms are gone.
I had a great tan but now I'm slightly red all over (not really bad
I think). I've shed all my
skin like a reptile — still some on my cracking hands — and I appear
to be one incredibly dried out woman (bad dehydrator accident here).
I'm looking for
somebody who can help a newcomer to P figure out what I am in for and how
to get my entire body out of the "parched" rough mode.
Rubbing up against me is like getting your cat to lick you clean!
Hey, I still have a sense of humor and the family is helping me
keep that too. I feel like a
greased up toad when I put on the lotion and in a matter of a few hours
I'm dry and itchy. HELP.
I'll accept the red spots but will I ever have skin that is a
little bit naturally greasy again?
Ed, looking for help
and suggestions out here in Knoxville TN.
I've been to a couple of the other sites but really enjoyed yours
and the folks who participate. Read
the articles and got tickled.
Would appreciate any advice from you or others.
I think I'm still in denial! This has managed to keep me from work.
And I'm nervous about going back since I've got a very stressful
job... -Sharon D.
Welcome Sharon. And
to think, I’ve been contemplating a cruise!
(That’s: I was
contemplating a cruise.)
I think you should
march right back to your derm, Sharon, and tell him to give Von Zumbusch
his P back! You didn’t ask
for it, you don’t want it — he
can have it.
Seriously, I’ve not
heard “Von Zumbusch” before, but then again, your derm probably
hasn’t heard of Nat’s Effect,
It sounds like, now
that you’ve been properly diagnosed, your treatments are working for
you. Dry skin and dehydration
are two huge problems that seem packaged with erythrodermic P, and
you’re probably already launched on some journey (of indeterminate
length) to discover your best
moisturizing routine. Fortunately,
when you find a good moisturizing routine both your itching and your skin
dehydration (non-P flaking, cracking, feeling of tightness as though your
skin shrunk while you were napping) should improve.
If you haven’t
already, you may want to read the exchanges in the FlakeHQ archive about
“A&D Ointment.” (A
search from the homepage on “A&D” should turn up about 9 documents
in the archives.) Most of
these have been archived in the past year or so.
It seems “A&D” — though touted as a product for babies
— is a mighty potent moisturizer that works for many flakers, too.
Please stay in touch
and let us know how you’re getting on, Sharon.
Very few flakers go from “What’s P?” to full-blown
erythrodermic as you have done. Those
of us who consider ourselves severe
are appropriately humbled by your experiences.
And we like you lots, Sharon, because despite what you’re going
through you’re still grinning. We
suck strength out of that like a thirsty man finding an oasis.