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Enbrel Study Subject has ‘Won the Lottery’
Stumbled upon your site while researching my wonderful P, and was
revisiting it for the laughs that some of the “Don’t say this”
comments let me have.
suffering from P for 8 years now and I believe my coverage is 60% or
thereabouts. I’ve been on the usual regimen: Topicals, MTX,
Cyclosporine, with rather varying success.
I was recently
enrolled in an Enbrel study at Robert Wood Johnson Medical Center in NJ.
It’s your typical 24 week study, the first 12 weeks being a double blind
been injecting myself with 2 shots 2 times a week for the last 2 weeks,
and I won the lottery. I’m actually receiving the drug. I
don’t know what dosage it is, but it’s either 25mg or 50mg. I
won’t find out until the end of the first 12 weeks.
working. While I still flake EVERYWHERE, they’ve gone from large
to almost like dust. My legs are clearing, my upper arms are
clearing, and my head doesn’t shed anymore. My body is slowly
coming around as well. I’d like to think that I might actually be
cleared sooner than later. I haven’t suffered any side effects
that I’ve noticed, and I can give myself the injections, so it’s not a
like, I’d be more than happy to post updates from time to time during
this study. Anything to help people have some hope in beating back
this wonderful companion we have.
Take it easy.
Response: You bet we’d like
the updates, Mike. I’m one
of the 26,000 people (or so) wait-listed to get Enbrel once they’re
manufacturing enough. Immunex
pulled a real stinker with their Enbrel-coming-out in the U.S. and
managed, mostly, to upset thousands of us.
manages to get Amevive on the market before Immunex gets back on track, I,
along with thousands of others, will probably try Amevive (alefacept)
before Enbrel. And, if
alefacept works, too bad Immunex.
(Also see Art
C.’s mail this month: Amevive Trial
Subject's Experience.) -Ed