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Current Enbrel Study Subject has ‘Won the Lottery’
from Mike M.

Dear Ed:  Stumbled upon your site while researching my wonderful P, and was revisiting it for the laughs that some of the “Don’t say this” comments let me have.

I’ve been suffering from P for 8 years now and I believe my coverage is 60% or thereabouts.  I’ve been on the usual regimen:  Topicals, MTX, Cyclosporine, with rather varying success. 

I was recently enrolled in an Enbrel study at Robert Wood Johnson Medical Center in NJ.  It’s your typical 24 week study, the first 12 weeks being a double blind random sample.

Well, I’ve been injecting myself with 2 shots 2 times a week for the last 2 weeks, and I won the lottery.  I’m actually receiving the drug.  I don’t know what dosage it is, but it’s either 25mg or 50mg.  I won’t find out until the end of the first 12 weeks.

And it’s working.  While I still flake EVERYWHERE, they’ve gone from large to almost like dust.  My legs are clearing, my upper arms are clearing, and my head doesn’t shed anymore.  My body is slowly coming around as well.  I’d like to think that I might actually be cleared sooner than later.  I haven’t suffered any side effects that I’ve noticed, and I can give myself the injections, so it’s not a big inconvenience.

If you’d like, I’d be more than happy to post updates from time to time during this study.  Anything to help people have some hope in beating back this wonderful companion we have.

Take it easy.  -Mike M.

*****

Ed’s Response:  You bet we’d like the updates, Mike.  I’m one of the 26,000 people (or so) wait-listed to get Enbrel once they’re manufacturing enough.  Immunex pulled a real stinker with their Enbrel-coming-out in the U.S. and managed, mostly, to upset thousands of us. 

If Biogen manages to get Amevive on the market before Immunex gets back on track, I, along with thousands of others, will probably try Amevive (alefacept) before Enbrel.  And, if alefacept works, too bad Immunex.

(Also see Art C.’s mail this month: Amevive Trial Subject's Experience.)  -Ed

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