Mail (May, 1998)

Nat's Effect, Meds Working, and Nightly Soaks
from Kelly

Ed: After reading the current additions to the Flake HQ web page I have a few comments to the letters written. As far as the symmetrical aspect of psoriasis [Flake HQ name: "Nat's Effect"], I find that it is very realistic. I can almost estimate where I will get P next. The only area I have not found this is on my knees. I only have P on one knee, everywhere else it's pretty symmetrical. The reason is a mystery to me.

As a response to Judy who is the school teacher who developed P at age 53, I feel she needs to know not all of us with P have bad luck with medications [see link to Judy's letter at the end of this file]. My younger brother developed a few patches when he was in his late teens. The Derm put him on corticosteroids and it cleared up permanently. I, on the other hand, have used almost everything known with at times little help. So not everyone is unresponsive to typical medications.

I have read several of the treatments that your correspondents have used and have tried one. For about a month now, I have been soaking in a tub of hot water (God, a hot tub would be nice) for about a half hour every night. The flakes have all but disappeared. After my soaking, I use Dovonex or Tazorac which has done little to clear up the red but at least keeps the flakes away during the day. I notice the difference if, for some reason, I cannot spend that half hour a night soaking. Thanks for the suggestion [actually, John's suggestion; see link at the end of this file].

Thanks for the great web page. -Kelly

*****

Ed's Response: Thanks for the feedback, Kelly. I imagine every derm in the world wishes your younger brother had been their client! I hear frequently about psoriatics who have been cured. I suppose so few of us know them personally because they no longer belong to our community. They don't join NPF and they don't visit Flake HQ. I know of no statistics suggesting how many diagnosed psoriatics are no longer psoriatics. But it behooves us to remember they DO exist. Not necessarily because their good fortune bodes well for we incorrigibles, but because their chemistry or psychology may suggest something we should know. Maybe the truth is being twisted by our semantics; perhaps it's not that psoriasis is "incurable," but that no one knows just what accomplishes the cure.

Previous correspondence Kelly references includes (and can be read from the Archives by clicking on):

Nat's Effect
Bad Luck with Meds
Soaking as Therapy

-Ed

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