Jul-Aug '08 | briefing | mail | interviews | articlespsorchat |  don't say this | flaker creativity | flakers' jargon | other places | archives | send mail | ed dewkesearch | acknowledgments | legal stuff | Flake: Confessions of a Psoriatic  | 2008 Ed Dewke

Psorigon, PS-98, OTC Remedies and CariDee English
from Dan N.

Hi. This website is great. I also suffer from Psoriasis and have done so now for 20 years — yes 20 years. 

I have tried many different treatments: UVB, PUVA, ye ole faithful Psorigon (which was a miracle before they took it off the market). I have been cleared 3 times, twice with PUVA and once with Psorigon. I found Psorigon to be an amazing product. I believe it was discontinued due to the Camfor in the product.  I pleaded with the Company to send me more but instead I received PS 98. What a nightmare, it only made my skin worse.

If anyone out there can help with regards to tracking down a good product whether it be purchased over the Internet or through a herbalist let me know, I have gone past the point of insanity with regards to opening up tubes of Diprosalic and Dovonex, plus Elcon, Coltar etc.

After 20 years, I’m now accepting the fact that I have to continue with my venture to find a treatment that actually helps clear the P. We soldier on, you are not alone out there. I have also heard of a product called Raptiva, Americas Next Top Model has used treatments similar to this and she has cleared head to toe and won the contest, her name being CariDee English, look it up. 

We are a team.  -Dan N.

*****

Ed’s Response:  Thanks for writing, Dan.  Yes, the Psorigon debacle caused quite a stir here at FlakeHQ, too, in the late 1990s.  Type Psorigon in the search box on the home page and you’ll generate a rundown of email exchanges. Everything I’ve read about PS-98 has been bad. Evidently, without the illegal ingredients the concoction is worthless.

Regrettably, the ingredients in Psorigon that made you clear so well are normally available only by prescription. I haven’t read exactly what kind of active ingredient was hiding in Psorigon, but have read allusions to both a steroid and a retinoid. The two powerful corticosteroids that are well known and much used are clobetasol and betamethasone — the illicit ingredient in Psorigon may or may not have been one (or more) of these (there are others). The two most important lessons we all learn from incidents like the hidden ingredients in Psorigon are these:  (1) What helps us the most is frequently more difficult to obtain (i.e., requires a prescription, therefore is illegal to dispense in an OTC product).  (2) Most OTC products aren’t all that helpful (for moderate to severe P); e.g., PS-98.

You won’t have any problems finding OTC products on the Internet, natural and otherwise, to treat psoriasis.  Start with Google.com. Search on “psoriasis”; pay attention to the ads in the right-hand column. Most of these sell information (books and such), OTC products, or therapies. Try the other search engines. When you discover one product or therapy or herb that piques your interest, narrow your search by using both terms, “psoriasis and ____” in your next search.

I can safely guarantee a tribe of flakers exists that will sing praises for virtually every remedy that’s for sale. That’s because in the OTC world there are no “but if” requirements in the market. You will find products that work very well for people with mild or super-mild P (an occasional spot or two) — but the sellers aren’t likely to use “severity” in their descriptions of “who should use” their product. Without these specifics, you can spend a fortune trying products that won’t work for you — or won’t work for long. 

You will also find many products that contain the same time-tested active ingredient (e.g., coal tar, salicylic acid or zinc). Some of these are new packages; some are new formulations. Aside from the amount of the active ingredient contained in a dose (or a dab) the other stuff often affects only the price.

Regrettably, there no doubt ARE natural and manufactured OTC palliatives that work for folks with moderate to severe P, but because they cannot be “monetized” with enough profitability, they are relegated to OTC status and must compete in a tough no-holds-barred marketplace. This is a rough place to be stuck when you suffer from P.

And about CariDee English: She is a spokesperson for the National Psoriasis Foundation in the U.S. We are all quite proud of what she has accomplished and her courage in being so open about what she had to overcome. Thanks for looking her up <wink>. -Ed

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