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Still Faring Well on Enbrel
from Nancy M.

Hi Ed!  I wanted to send you a follow up. I had written you about 2 1/2 months into my treatment with decent results. [See Enbrel Does the Trick After Post-Partum Flare-up.]  Well, at 5 months (into my 6th now) I'm about 99% clear. I have one tiny stubborn patch on my scalp. I've never felt better with regard to my PA as well.

I wanted to send this update to give people hope to hold out for results. Enbrel is much slower than I expected. It seemed like the final clearing happened overnight.

I'm also still breastfeeding. I wanted to post this because one of the latest emails mentioned the possibility of testing milk. My Ped offered to do this, and I didn't bother because I was feeling very confident about the information I received from Dr. Hale regarding the molecule size of Enbrel, etc..  But, if someone wanted to do this, they can test.  My Ped had done the same looking for another biologic (I think Humira) and it wasn't found in the breast milk.

I also participated in a focus group put on (I think) by an ad agency for Enbrel. They showed us some possible ways to market the product. It was nice to be with some other people who are on Enbrel. Everyone was showing results, and 2 of us were totally clear.

Hope you are doing well. -Nancy M.


Ed’s Response:  Thanks for the follow-up, Nancy.  Hopefully Dr. Hale’s research results are being read by derms everywhere.  As you mentioned in your email earlier this year, it’s unlikely we’ll hear Amgen (Enbrel’s manufacturer) say anything positive on the subject of Enbrel and breastfeeding for a long time.

The volume of Enbrel success stories continue to mount.

I was jealous to read about your participation in the advertising focus group.  That sounds like fun.  I’ve heard Amgen has taken some flack for its television ads — people can, apparently, deduce that Enbrel is a “cure” from watching all those P-free actors delighting in their semi-nudity.  I, on the other hand, thought the catch-line — “Get Psoriasis off your back!” — was pretty witty.  Can’t wait to see what they come up with next!  -Ed

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