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Sorry I haven't written for so long and sorry for the name thing.
[Note: Denia wrote Tazorac
Healing Her Nail P in March but the signature was “Dxalic.” -Ed]
wanted to let you know that I have graduated from Nail P to hand, fingers
and feet P. I am moving on up.
I go for PUVA treatments every 2 days.
My feet are uuuuuugly. I
was really getting depressed until my husband sat next to me on our bed
(while I was soaking) and blurted out, "Hey! Why so sad?
We now get a handicapped parking permit!" which just made me
start laughing. I love
him for being so supportive.
The nail P is
now coming back, but the Tazorac worked pretty well. I
stopped using it for several months, now I will start again.
Ouch, now I know how you feel when you have to stop typing because
your fingers hurt.
Hey Ed, do the
tips of your fingers hurt? Like even when you're not doing anything?
I wonder if these are like signs of arthritis.
Is anyone in a wheelchair because of foot P?
My son tells me he will build me a wheelchair with some type of
nitrous oxide so I can get places faster.
Thanks Ed, love
ya for your honesty, humor and wit. I
console myself by thanking God I'm not that bad, and I have FlakeHQ to
share. Take care. Your sister
in P. –Denia
Response: I like Denia a lot
better than Dxalic.
Sorry to hear
about the P spreading bit. My
years of wide-eyed aghast-ness were 1990 through 1994.
During those five years my P blossomed from scalp and two or three
face lesions to 80+% coverage. It
was a terrifying metamorphosis. (I
thought often of Gregor Samsa, from Kafka’s novella, Metamorphosis, who woke up one morning to find he had turned into a
fingertips ever hurt because of P? You
betcha. Before I started
taking methotrexate (mid-1999) my hands would get so bad that I could
predict when and where a crack was going to open.
I knew just when to make a fist or tightly curl a finger to
actually force a crack to open. It
was one helluva bar trick; but by then I had stopped frequenting bars.
Anyway, sometimes the fingertips would hurt from cracks in the
skin, other times they would hurt from the psoriatic arthritis (PA) in the
last knuckles of the fingers. I
felt the twinges of pain typing on a keyboard and just thanked God we were
no longer using the manual Underwoods I’d learned to type on in the 60s.
(I still possess three manual typewriters — i.e., mechanical with
no power supply except the typist — upon all of which I could once rap
out 75 words per minute or better. Now
I can’t throw my fingers far enough or strong enough to get even strikes
of keys against the platen. And
I can no longer “rap.” All
I can do is “jam.”)
Is anyone in a
wheelchair because of foot P? I
can’t point my finger to anyone at this moment but I would wager there
are plenty of cases out there. My
wife’s foot P will sometimes pain her greatly, though it’s never
landed her in a wheelchair. PA
in the foot can certainly be debilitating.
But not to overstate the case, these are extremes that most flakers
won’t ever reach. I, too,
thank God I am not that bad.
When your son
builds you that wheelchair with an engine and nitrous oxide booster you
are going to be a very popular lady. We
Stay in touch, Denia. Denia. Oh yes, much better than Dicks Alec. <wink> -Ed