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It wasn’t psoriasis
I have been reading your web site for a few years now.
It has been a source of encouragement at times when it seems like
there was little hope for any improvement in my skin condition.
I have had a slowly worsening inflamed, flaky, itchy skin condition
between my buttocks for about 10 years.
I showed this area to a doctor around 6 years ago.
I was immediately referred to a dermatologist.
My first derm did a biopsy and the diagnosis was psoriasis.
The past 6
years I have tried every prescription topical that I am aware of with
little improvement. They only
thing that seemed to help was steroid creams.
Dovonex, Anthralin and Tazorac were of no benefit.
A few years ago I tried Soriatane.
It actually seemed to help a little, but it was definitely causing
my hair to get thin. At the
time I decided I'd rather have psoriasis than be bald.
Since then I’ve also tried 3 months of PUVA.
The PUVA actually made my skin worse!
time I saw a total of 4 different dermatologists.
Only my last derm questioned
whether my skin condition was really psoriasis, and then, only after both
Soriatane and PUVA failed to give me any relief.
My derm suggested doing another biopsy.
We were both surprised when the diagnosis was not P!
The report said
that I have a peroketosis. I
do not know much about this yet or why I have it.
The research that I have done so far says that it is caused by
excessive sun exposure. Given
that this is located on a part of my body that never sees the light of day
this is definitely not the
case. My derm told me that we
may never know where it came from.
prescribed a topical called Carac that has greatly improved my skin in
only 2 weeks. This is all
starting to make sense. The
steroid creams helped to relieve the inflammation but the other topicals
were of no real use.
questioned the diagnosis myself. Reading
web sites like yours made me think that it is not unusual for psoriasis to
not respond to treatments that are effective for others.
I was even considering trying MTX.
I guess the long and short of what I am saying is that if any of
your readers have the smallest doubt that their skin condition may not be
psoriasis seeing another derm or having another biopsy done is a good
Thanks for the
encouragement the past few years. –Dan A.
Response: Could I be saying
“Goodbye” to someone who no longer needs FlakeHQ?
Dan, I’m so glad you took the time to write and to let us know about your
erroneous 6-year diagnosis of P. That’s
just awful. And also awful, I
can’t find a THING under “peroketosis.”
However, I did find a web page under “porokeratosis” — http://atlases.muni.cz/atl_en/sect_sect_24.html.
Reading it — what I could understand — sure sounded similar to
equally technical expressions describing psoriasis.
But it didn’t tell me anything I could understand about the
WebMD for your drug, Carac (fluorouracil), which did yield a lot of
information. One comment:
topical is used to treat scaly overgrowths of skin (actinic or solar
keratoses). Fluorouracil topical may also be used in the treatment of
superficial basal cell carcinoma. http://my.webmd.com/content/article/4046.1648
according to this article, works by killing the fastest-growing cells,
such as abnormal skin cells.
thing is, now that you’ve apparently been correctly diagnosed, you’ve
been prescribed the proper remedy and already it’s working.
After 10 years
of symptoms and six years of barking up the wrong tree.
Can I be mad
and happy at the same time? I
Thanks for your
warning to all of us, Dan. I
titled your correspondence the way I did so that, forevermore, it will
stand out in the archives.
Best of luck to you. And, in the future, if you feel like visiting us just for old time’s sake, please do. Memberships at FlakeHQ can’t be issued in error and never lapse. -Ed