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and Pigment Loss — Related?
I was wondering if anyone else out there in P land has a problem
with losing pigment.
I'm 54 years
old and my face is really getting bad, I've lost all the pigment around my
nose and chin and also some on my neck.
I've asked my derm about it but she is not able to give me an
answer. I've undergone PUVA
for years and I've wondered if that has had an impact on the problem.
Ed, I really
enjoy your site, I check in every month.. -Sue
question, Sue. I clicked
through my usual look-it-ups and came up with nothing that would shed
light on your facial pigment loss, let alone link it to P or PUVA
readers will have some information.
In my case the
pigment loss came first. I’ve
had vitiligo most of my life. I
was born with a “white patch” on my chest and, in my teens, it spread
to my arms and neck. P came
when I was 39. As a
consequence of P, those areas of my body that have no pigment don’t get
sun exposure anymore. Everything turns white “where the sun don’t
shine” so my vitiligo patches are almost indistinguishable.
I don’t like to consider myself a “pale, gaunt fellow.”
I prefer to think of myself as an “alabaster statement” of some
kind.... (Oh heavens, that
even made ME crinkle my nose!)
One thing I
would say. My derm belongs to
some special-interest Internet forums and when I hit him with a question
he can’t answer, he posts a query in these doc-only forums.
I know this because sometimes he forwards their responses to me.
Granted, this may be above and beyond the call of duty for any derm
— but should it be?
enough — you are, too — to demand our money’s worth out of our
health caregivers. Next time
your doc doesn’t answer, or gives you a non-answer, think about
responding this way. “Okay.
Would you look into it for me please?
I’ll call in a week to see what you’ve discovered.
Stay in touch, Sue. Hopefully some readers can shed more light on this. -Ed