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(the dance) as Therapy
Hi Ed, How
lovely to be writing to you again! I have a few things to address.
still in Koebnerland. My hypertrophic lesion on the back of my hand
gets worse and worse. I would
give Melaleuca a try, does it work
only on feet? What about hands and body? It is expensive for me to order
because I live in Portugal, so I would like to know whether someone has
tried any products before I start ordering. The link you inserted doesn't
Being a vet
student (T-shirt: "I flake on more than one species") and a fan
of tea tree oil, I looked into it and found out that it might be toxic in
some cases, having led to a few deaths, human and especially cats. So, if
any of you use tea tree oil on your skin or recommend it to someone, you
might want to tell them to dilute it and never, ever to ingest it (and to
watch it with cats, funny metabolism). Natural doesn't mean harmless.
anyone tried fish oils directly on the skin? Does it work?
Third, I tried
Solafalk, pills — nothing there — and a thing called Regender, no side
effects. The doctor wanted me to do Regender and another one together,
said second one having horrible side effects, like fetus mutation, excess
pilosity and, curiously, alopecia [hair loss]. So, I wouldn't be able to
get pregnant for 3 years — not that I want to now, but if it does that
to the fetus what does it do to me? — and I might end up bald or
bearded, or both? I guess then I wouldn't have to worry about getting
pregnant! So I politely declined and I don't know if it [Regender] worked
because I kept forgetting to take the pills (before food).
I tried a cream
at the same time that actually worked, Dermovate NN — forget name and
can't find it now. I was
beginning to see the skin on my hand and normal lesions cleared but then
it stopped working so everything is back but I really cannot be bothered
so we pacifically coexist.
And I am still
smoking and drinking loads of coke so if my psoriasis is offended in any
way, well, the door is always open and, as Emily Dickinson wrote,
"parting is all we know of heaven."
Point is, I am
a liberated psoriatic and no longer a slave. My arms and hands are for all
to see and see they immediately do. I have started Salsa lessons and told
every one of my partners what it was and that it wasn't contagious.
I feel diseased and promiscuous, LOL! because they were literally
holding it and every one of them looked at me as though I were crazy for
even thinking they'd think that. One of the guys actually pulled me closer
to him, some sweet subliminal way of saying it doesn't bother me. It felt
wonderful. All this protection and immediate announcements get bothersome
after a while. My hand hurt from all that holding and pulling and I'll
have to find a way to wear some protection because that plus all that
aftershave something or other cannot be good for the skin.
Do you American men also bathe in the stuff? I stank even after I
washed my hands twice. But I recommend Salsa as therapy, I really do. It
gets you moving — burning toxins — and it is just, well, good clean
fun. I laughed a lot and it felt wonderful.
experts now believe that the Torah mentions psoriasis; i.e., what was
often described as leprosy was actually psoriasis.
I expect I am
lucky, for had I lived then I would have been banned forever (Tsaraat,
it is called, unclean as they come). So it has been around for centuries.
I read somewhere that even Paul flaked. Thus one learns one is biblically
correct. And they say being Jewish isn't fun!
There is actually a kind of reverse Koebner.
I found the reference once, it is a name with lots of AA in it,
Amarin, Amazin, something like that. The phenomenon is basically that if
you keep peeling the lesion it will eventually clear. I have noticed that
on my scalp there are a few spots that have cleared because I found them,
picked at them, they bled a bit, dried, were picked at again and so on
till it cleared. Can't say anymore on the subject so will hit the bed with
my animal innards book. Are you drrrrooling yet? A fate to envy.
Bonalfa too, and that didn't work either. –Johnny-from-Portugal
Response: Good to hear from
you again, too, Johnny.
point: Frankly, I’ve been
having trouble myself with the Melaleuca web site.
I’m sorry about the link imbedded in Clara’s
email. That LONG link took
me to a dynamic page about the product Sole to Soul (foot treatment).
It doesn’t appear to work as a link but must be got to the hard
way, drilling down once you’re in the site.
Go to www.melaleuca.com
and try to find “Sole to Soul.” Good
luck. So far, this is the only
Melaleuca product Clara's tried that seems to directly benefit her P.
But we’ve only scratched the surface of what’s available.
Re Point 2:
Fish oil as a topical? New
to me. If anyone else has
experience using fish oil directly on lesions, please let us know.
3: Your continuing litany of
remedy trials is ... typical? I’m
afraid so. But let’s not
leave Emily’s line so starkly out of context:
life closed twice before its close;
huge, so hopeless to conceive
thought, in your context, the single line — Parting
is all we know of heaven — works much better by itself.
Johnny, if you can survive Salsa lessons while flaming, nothing else life
throws at you is likely to be too tough for you to handle.
Your word-picture of the experience had me giggling.
And, of course, can there be but one answer to your question, “Do
you American men also bathe in the stuff [aftershave]?” Absolutely not!
(If we did, we do no longer. I
have just this moment cleaned out that particular shelf of my toilet
point: Psoriasis in Bible
times. Leviticus (the book of Laws) provides most of the clues.
Here are a few paragraphs from an earlier essay of mine:
The Bible's treatment of leprosy ... is not so easy to dismiss. It should be easy to dismiss because leprosy, also called Hansen's disease and bacillus mycobacterium leprae in Latin, is a very specific disease with a very definable agent. If leprosy were really leprosy in the Bible it wouldn't need to be discussed here at all. But such is not the case. The word has found itself obscured through the years. Often the word "leprosy" in the Bible does not mean Hansen's disease, but some other skin condition or conditions. Hebrews and Leviticus are the books that most confuse the issue. These other kinds of "leprosy" weren't necessarily terminal and, in Old Testament Israel, priests were in charge of the diagnosing.
To have the disease (or diseases) called "leprosy" meant you weren't necessarily ill, you were ritually unclean. Your skin was two-toned and you were made to live separate from the community. There weren't any cures, but the priests kept their eyes on you and decided if you became cured and could be readmitted into the community. Often people did get better—which is the single greatest indication that Biblical leprosy is not always actual leprosy. However, when a "leper" got better and was allowed to go home, the priests instructed him or her in the proper guilt and sin offerings to atone for his or her impurity.
Frankly, folks, this is a substantially more hideous legacy for flaking than Job's victimization by gaming deities. Everywhere we psoriatics turn the remnants of "uncleanliness" are affixed to our psoriasis like dust bunnies under davenports. This isn't necessarily a conscious association. If you asked someone today why psoriasis and psoriatics repulse them, they probably would not use the word "unclean." But culture perpetuates behaviors without necessarily perpetuating the logic behind them.
days when someone asks me what is wrong with me and I say
"psoriasis," if they respond "What is that?" or
"I've never heard of that," I am compelled to ask, "Have
you heard of unclean?"
And on the
Fifth point: I’m almost
certain, too, that what we call “reverse Koebner” is an acknowledged
phenomenon with a name of its own. In
fact, I thought I read something fairly recently about it in an NPF
publication. I can’t find it
at the moment. It might have
come up in an on-line chat. If
anyone knows what this is called, please drop me an email.
so long to write again, Johnny. And
by the way, KoKo is just fine <wink>. -Ed