P Throughout Family: Good Research Subject?
Ed: I am a 27 year old mother of 4 and have had P since I was 4 years old. I was diagnosed at 4 because my father and mother both knew what it was, so they got me to a derm as soon as they could. My Dad has had P since he was 18 or so and my Mom's sister has had P since she was 18 or so. My second child was born with a lesion on her scalp. I believe it was [started] from the internal monitor they use to get a better heart and pulse rate before birth.
I was curious if my family history would be of any help for P research? Of my 4 kids, only one has it so far. I haven't had to deal with flaking for some time. My oldest child is 5 and the youngest will be a year soon. My P goes into remission during pregnancy, so, as you can add, I've had more good months than bad months over the past few years.
If you have any info for me or think my family and med history would help with any P research, let me know. I am in Oklahoma City and will be here for some time. And, no, I am not looking forward to the cold winters. As a rule, cold winters are not good to flakers. Sincerely -Susan M.
Ed's Response: Thanks for writing, Susan. Your daughter born with a lesion on her scalp helps put to rest a consideration from months ago when a lady wrote claiming her mother said she had a lesion on her scalp at birth. She was wondering if that was possible. Guess you nipped that speculation in the bud. When you say the internal monitor might have caused your daughter's pre-birth lesion, I presume you are referring to the Koebner Phenomenonthat fact that lesions often result from and on a site of specific skin trauma.
I'm forwarding a copy of this exchange to the National Psoriasis Foundation. They keep track of current research and research requirements. I will pass along your e-mail address so if they know of any research that might benefit from your family history they can get in touch with you directly.
Though I know harsh winters are bad for my
P, Susan, I've only briefly lived in a climate without
harsh winters. So why are we gluttons for punishment? I'd encourage
you to stay pregnant and prolong the relapse, but that probably
wouldn't even be funny, would it? -Ed