May-June '05 | briefing | mail | don't say this | flakers' jargon | flaker creativity | articles | interviews | other places | archives | send mail | ed dewke | legal stuff | search | PsorChat | PsorChat Review | acknowledgments | 2004 Ed Dewke

Four Year Old Losing Hair to Scalp P
from Sophie

Hello, I just found your website and don't know whether to feel relieved or alarmed. My daughter, soon to be 5 years old, is suffering from psoriasis on the scalp. After reading some of the letters on your site, I'm scared of what Julie's condition could become.  It's not too bad yet, but in 6 months, a dime-sized patch has grown to about a 2-inch long oval bald spot. Nothing we do seems to help. We saw a dermatologist who told us to try Head and Shoulders with Elocon cream, then H&S with Elocon solution, then we switched to Neutrogena with T-Gel shampoo, and now she's got us using Carmol cream, which comes with an antibacterial shampoo, but the shampoo is not longer being sold.  So we use the cream with T-Sal shampoo. Julie doesn't seem to mind the psoriasis, but she does hate having her hair washed.  My husband and I are afraid she's going to keep loosing hair, and worry that she is going to have hard time when she starts kindergarten in the fall.  We have an appointment at UCSF in two weeks (we live in San Francisco) with a pediatric dermatologist, so I'm trying to learn all I can before then.  

Any feedback you could give me would be greatly appreciated.

Thank you so much.  -Sophie

*****

Ed’s Response:  You couldn't be headed for a better place than UCSF to explore possibilities for your daughter's scalp P.  The folk at the UCSF Psoriasis Treatment Center are world famous and you can be certain of receiving the most up-to-date care available. 

Now I'll got out on a limb and tell you what I think — but you will, of course, do what the folks at UCSF say.  I think Julie's too young for any indication of P to suggest any specific future course for the condition.  I have a granddaughter who was also diagnosed with a P lesion on her scalp (at age 9), for which she was given a mild topical corticosteroid.  The lesion went away but has periodically returned (she's 11, now) but there have been NO new outbreaks anywhere.  (I'm sure I'd know because I'm the one she blames!)  What you've been doing to treat Julie so far has been mild and the folks at UCSF may ‘notch this up’ a tad, probably with a mild steroid, at least to get rid of the current lesion and give the scalp some time to recover. 

Don't worry, Sophie.  Be THANKFUL you are where you are and get to go to one of the most respected P clinics in the world.  And let us know what happens.  -Ed

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