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started Raptiva on May 6, I received my first shot in the doctor's office.
I gave myself the shot. This
certainly seems a lot more convenient than the Amevive
routine. I started having
a major flare about five weeks ago. I
was at my wits end. I look
like lobster woman. I actually
think I could get away with wearing no clothes and look like I was in red
hate this disease. Even though
I have had it for years, I hate what it does to your quality of life.
The pain, the itching, the burning, the excessive flaking.
I leave piles of skin everywhere.
I follow myself around with the sweeper.
anyway, enough complaining. Since
my shot on Thursday, the flaking has slowed down.
It’s not as red and I'm not in pain.
I didn't go to work on Friday because I felt like I had the flu.
I took some aspirin and started to feel better.
My temp went up to 100f. Well
I hope this Raptiva works. Take
care Ed and by the way people refer others to your site on Cell Skin.
Its an interesting site. -Sue M
Ed’s Response: Good to hear from you again, Sue. Once again, you are ahead of me. If I ever get my lymphocyte counts up into the normal range, again, I may try Remicade or Raptiva. How did you ultimately fare with the Amevive? And, of course, please keep us apprised of how you are doing on Raptiva. -Ed