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Working AFTER 12 Week Course
Hello again Ed.
I finished up my 12 week course of Amevive and it seems I was just
a late bloomer! After the last
injection I had a great response. I
am going on 6 weeks without any shots, and I am almost clear.
The bottom of my legs are my stubborn spots, but they are clear
enough for me to shave! Finally!
My arms and back are virtually clear.
My scalp and ears, however, did not really clear much at all, but
over all, I have to say that I am very, very pleased with the treatment
I have however,
decided not to go back on the Amevive again unless I really have to.
The weekly shots and weekly blood tests took up a lot of time.
I am a full time nursing student and a mother of three active boys,
and I found the time constraints very hard to deal with.
The blood work had to be done in the morning only, and my
doctor’s office is only open till 4.
Unfortunately, I am usually in school during these hours, or
working at the hospital.
experience was dealing with that lovely lower immune response.
Since I work at a hospital for school, I am constantly around
infectious agents. Normally,
these would not bother the normal person, but because of the treatment, I
ended up getting pretty sick with an intestinal infection that kept me out
of service for about 2 weeks. I
am better now, and all healed up, but I think I will wait to try the
Amevive again, when I am not working in such an infectious area of the
Right now, my
derm has prescribed a home phototherapy unit and I am going to try to keep
it somewhat under control with the lights at home as long as I can.
Wish me luck!
I will keep you updated on how long this remission lasts!
Thanks a bunch! -Dina S.
Response: This is great news,
Dina! And an important lesson
for anybody trying or planning to try Amevive — don’t be in a hurry!
interested to learn if second and successive ‘rounds’ of Amevive take
as long to bring about remission. But
I understand you might not be my source of information in the short term!
Your second important lesson for us has to do with the
susceptibility to opportunistic infections being on this drug (and
other biologics) can bring about, and how important it is to avoid such
infections. Working in a
hospital poses a danger, as you’ve experienced first hand.
But a dentist’s office, a neighborhood clinic, even a day care
center can pose above normal risk.
childhood mantra of “wash your hands after...” many of us don’t know
much about infections or how we get them or might prevent them.
We’ve all learned something from the induction of HIV to our
culture, but we would all benefit by a little more knowledge —
especially if treatment with a biologic is in our future.
precautions” are mostly guidelines for healthcare workers and those who
work in healthcare settings. (You
can probably recite them backwards, Dina!)
But they’re worth reviewing.
Here’s one web site worth perusing:
Thanks for the report, Dina. Please do keep us apprised of the remission. I hope it lasts a long, long time! -Ed