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My dad had P since age 7. He
died with it at 58. But, to
encourage you, he did find considerable help in the Goeckermann treatment
and PUVA at 47, and spent about 2 years TOTALLY clear.
It was amazing. I think
the only reason he didn't stay in complete remission was he got tired of
the regimen. Still when he
died he was down from 80% to about 20%.
For him, that was a miracle.
was diagnosed at 10. Guttate
— not bad. Less than 1%.
Went away on it's own. Never
got worse. Had a flare up
again in early twenties — Guttate again — did tar and sunlight — Dad
was in PUVA at the time. Got
advice from the nurses at the hospital.
46 now and having my third flare-up of a lifetime.
I KNOW. I'm very lucky.
I have perspective on this disease.
Guttate again. Except
this time my face is covered.
Very uncomfortable. See
the Derm on Monday — that should be interesting.
Lots has happened with P since my dad died 15 years ago.
Lots more options.
- wanted to say thanks. I've
been a bit low about it, even though I know I'm one of the lucky ones.
And FlakeHQ gave me support and allowed me to laugh.
Which is no small thing. Thanks,
Response: I’m glad you found
us and found some laughs here, Franciene.
The fact that your case may not sound as serious as some of those
described on this site does not diminish our appreciation of your
despondency over the flare.
know — having just had a rebound myself — that it can be much more
difficult psychologically to deal with P when it returns after a long
absence. I think it’s a
sensitizing, desensitizing thing. When
we have active P and must deal with it day in and day out we can, if
we’re fortunate, become somewhat desensitized to it — perhaps we
should call it an emotional callus. Then,
if we’re fortunate enough to experience a long period of lesion-free
skin, we lose that desensitization.
once told me that having P is like being in prison (I’m not sure whether
or not this individual was talking from experience).
He said, when you’re incarcerated for a long time you get used to
it, or you make yourself get used to it, and you just get on with it.
Then you get out and what all you’ve missed while you were
“inside” leaves you breathless with joy.
The prospect of going back, at that point, is agonizing —
But you know the good news: all those new treatments that may hold promise for you. By now you’ve had your derm appointment and have probably picked a therapy. I hope it’s working for you. Let us know. -Ed