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Predictable Litany of Symptoms Presage her PA Flares
Ed. I came across the
correspondence at FlakeHQ titled, Lonely
and Flaking in the UK. This
may or not be related to something Annie said about the sore throat, but
each time I have a bad flare-up of joint pain I also get sore throats.
"onto" it now but about a day before I am to experience the
really bad joint pain I start to feel sick.
The first couple times I thought I was getting the flu.
My throat would become very sore and this past time I had a node
under my ear swell into a big hard lump.
My throat, fortunately, will feel better after a few days and the
node will go down, but then I'm left with unbearable joint pain.
I figured in my case it's my hyper immune system.
You know, it needs to start kicking out those T cells to wreck
havoc on my poor innocent joints!
the way, I really loved your briefing.
I'm sorry you are having such a hard time but you write with such
passion that I'm nodding my head to everything you say.
Very few people who do not have the disease (P or PA) can fully
understand the emotional rollercoaster one goes through.
My boyfriend tries, as best he can. Co-workers are a different
story. Even though I work in a
nursing home, with nurses, nurses aids etc, their empathy dried up a long
time ago for anyone in pain. They're
barely sympathetic for the 85 year-old with osteoarthritis, let alone the
26 year-old with some arthritis they've never heard of.
It's even worse because I don't look like there's anything wrong
with me. I regret now taking
for granted all those years that I jumped out of bed with a
"spring" to my step. Now
I literally roll out of bed so I don't have to use my shoulders or hands
to push myself up.
I really wish you the best of luck with your psoriasis.
You know some days it feels like it's only luck that will help
because it's so volatile and unpredictable.
I'm not going to tell you to keep your chin up because I know you
will. -Claire S.
Response: Your list of successive
symptoms at onset is strange to my ears, Claire.
First sore throat, then flu-like symptoms, then (maybe) node
swelling and, finally sore joints. Perhaps
you’re right and it is a hyper immune system over-reacting to the P or
have noticed somewhat similar symptoms in my case, but usually in reverse
order: first comes the bad
joint pain, then the flu-like symptoms including fever, lethargy, loss of
you wrote at the first of the year (Claire’s
Story: Not New But Well Told) you said you were scheduled to see a
rheumatologist. What did you
discover at that visit? A
rheumy might also be able to shed some light on your repetitive litany of
for your kind words about last month’s Briefing.
Now that the rebound has crested, lesion growth has stopped, and
the Soriatane is doing things to the lesions (but not clearing them), I
look back on those first few despairing weeks and, like many flakers,
I’m sure, feel a little sheepish about my woe-is-me state of mind.
It seems I’ve once again survived it.
And, true to form, if I obtain clearance again and it lasts for
some length of time, when it finally acquiesces to my body’s
incorrigible need to flake and I rebound again, I will have forgotten,
again, and it will be woe-is-me — again.
give myself a little excuse, I had the double whammy of the rebound AND
the news about my T-cell problem, which prevented me from trying Amevive.
By the time you read this, Claire, you should have reached — or be near — the end of your Sophomore year at college. I hope you are looking forward to some fun this summer. -Ed