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to Hear from Soriatane Users
My name is Tim and I have been suffering with P. for about 20 years
(just turned forty). My first outbreak came right after a bout with strep
throat. Over the past twenty years I have been completely clear twice and
have experienced significant clearing three or four times.
Each time I
cleared completely it was due to PUVA treatment; however, I am concerned
that the potential for skin cancer is now a significant risk.
clearing episodes occurred while I was engaged in a strict diet and
work-out regiment. Unfortunately, my work, travel and family requirements
make it extremely hard to maintain that regimen. Consequently, my P has
relapsed (each time getting worse) and now I find myself considering
Soriatane therapy. I would like to hear from people who have tried
soriatane to help me decide if the potential benefit outways the risk. The
Roche web-site is somewhat confusing with regard to this.
Thank you and
best wishes to all! -Tim B.
Response: Hi, Tim.
If you search on “soriatane” from the FlakeHQ
home page you’ll get about 69 references, most from correspondence
archives. I’d suggest you
browse these if you haven’t already.
read Mark Shaw’s May, 2000 letter titled (surprise, surprise) Want
to Hear from Soriatane Users. I
don’t know whether his email address, which he asked me to include with
that posting, is still correct, but you might want to give him a try.
sure to get responses if you post an inquiry on the alt.support.skin-diseases.psoriasis
Good luck! -Ed