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— Hopes on Enbrel and Olux
Dear Ed: I’ve
had P since I was 8 — now I am 38. I
tried everything, like everybody else, nothing really cleared my P.
I had cortisone
shots for the longest time, and went on UVB for the last two years until
the P got worse.
Last year my
joints started to hurt, two swollen fingers, two swollen toes, and painful
elbows, and, yes, I was told I had P-arthritis, too.
The P is so bad
that I think it's considered 70% of my body.
I was scared to try Enbrel because of the possible risks that I
I could not
take this anymore if it weren’t for my responsibilities — sons of 8
and 4. Otherwise I would end
Enbrel about 5 weeks ago, still no improvement.
I read that it does take between 3 to 6 months to see the result,
if any. I am like you, I will
try Enbrel for six months and if that doesn't do the trick, I will move on
to Amevive and/or hopefully by then Raptiva will be available.
I tried Olux
about a week ago after reading your site, yeah, finally something that
really helps! Not clear yet
but the redness and the inflammation has reduced.
My bed sheet still has blood on it every single day but at least I
can get a couple hours of sleep. You
really should try it! I am too
lazy so I only use it once a day and it's that good already!
I will start using it twice a day for another week or two.
As far as
Enbrel — I so hope it will works! It
does help with my PA and again nothing yet on my skin lesions.
Let's hang it there. God
bless! -Veasna W.
Response: We will hang in
there, Veasna, at least for a few more months.
I compelled my docs to let me try doubling the dose of Enbrel (from
25 mgs to 50 mgs) — this despite the bout with cancer I’ve just gone
And I’m using
Olux foam now, too! And am
about as happy with it as you are. What
a wonderful way to get clobetasol propionate into your scalp (no grease or
oil). And, what a wonderful
way to apply something that works to skin lesions right before you go to
bed (no waiting for it to dry before you squirm in between the sheets).
Stay in touch, Veasna. I’ll let you know how I’m doing if you let me know how you’re doing! <wink> -Ed