|April-May '02 | briefing | mail | don't say this | flakers' jargon | flaker creativity | articles | other places | archives | send mail | ed dewke | legal stuff | order | search | ©2001 Ed Dewke|
Liver Biopsy Survivor
I really love your website. I
have known all along that laughter is the key to coping with this shitty
rash of mine, but your website has given me more freedom to laugh at my
self and my condition. NOBODY
in my family has P, so I had no one with whom to discuss it.
Oh, I could talk about it with my two sisters, but they would never
fully appreciate all my moaning and groaning about itching, scratching and
I had my first
liver biopsy on March 4. Piece
of cake! I've been on
methotrexate for 2 years. The
worst part of the procedure was being off Vioxx for the 3 days prior to
the biopsy and 3 days after the biopsy.
Vioxx keeps my hands working, so I really missed it.
rheumatologist signed me up for Enbrel.
Of course, there is a 4 month waiting period for drug recently
approved by the FDA for psoriatic arthritis.
Hopefully this summer I can get started on that and not have to
worry about any more biopsies. Keep
up the great work! -Leigh W.
Response: We should start a
club, Leigh — Support Group for Biopsy Survivors On the Enbrel Waiting
List (SGBSOEWL ... well, the acronym doesn’t do anything for me).
I’m glad you,
too, had a recently uneventful liver biopsy, Leigh.
Well, I mean I’m glad it was uneventful.
I’m like you: Regardless
of how trivial it all might seem in retrospect, an alternative that would
mean never having to go through it again is more appealing.
Let me know
when you get your letter from Wyeth/Immunex (provider of Enbrel) that says
Come on down.... –Ed
Also read: Skin Cancer Combatant on Enbrel Waiting List