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I am a Marketing Director for Biogen, a biopharmaceutical company
with a product currently under review with the FDA.
Since we're under review with the FDA, I have to adhere to
regulatory guidelines that prohibit me from mentioning the product — but
judging from your website comments, I'm fairly certain you know what we're
I have been a
long-distance admirer of your site for the last year or so.
It has been a great source of information to us as we've tried to
understand the physical and emotional mindset of psoriatics.
We certainly have a great deal more learning to do, but FlakeHQ has
truly been a great help!
I wanted to let
you know that Biogen just launched a psoriasis disease education site
This site marks an important first step as we begin to forge a
relationship between Biogen and psoriasis patients. This U.S. site will be
followed by launches in four European countries: France, Germany,
Netherlands, and Sweden. We
will issue a press release announcing the site and begin site advertising
next week. I just wanted to
give you an advance "heads up" so you could check it out if you
were so inclined.
The content of
PsoriasisSupport.com is arranged in categories:
Psoriasis — individuals
can find information about psoriasis, the causes and types of psoriasis,
the science behind the disease, the role of immunology, future biologic
treatment options, and the most recent news on the disease.
with Psoriasis —
visitors can get advice from experts, submit their questions, and read
recent articles and helpful tips on psoriasis.
— people with psoriasis also have the opportunity to participate in a
supportive community by joining a message board and exchanging information
with others, sharing experiences, and making new friends.
— visitors can also access a list of associations, resources, support
groups, and a current events calendar to find out what's going on in their
assures all users privacy and confidentiality.
access all of the site information by becoming a member.
You'll see that we're offering a free copy of the NPF's book The
Best of It Works for Me to encourage membership.
The site also offers links to psoriasis.org
and includes a significant amount of National Psoriasis Foundation
content.... –Eric K.
Response: I went there, I
checked it out, I am impressed. As
far as pure information goes, “PsoriasisSupport” has more and appears
— to me at least — to be better organized than “Psoria-Sense” (the
Roche pharmaceutical site).
By the way,
Biogen’s contribution to new P treatments is Amevive (a.k.a. alefacept)
— see in the Archives, from March 2002’s email, Flaker
Friend at Biogen. A new biologic treatment shortly to be unleashed
upon the flaking public. For
more about Amevive, check out these links:
(this one’s the best)
interesting that this is the second web P-site to be sponsored by a
commercial pharmaceutical firm (though Biogen, as Eric points out, likes
to think of itself as a biopharmaceutical
company — its products are derived from genetic engineering rather
than traditional chemistry). Perhaps
word’s out that flakers are highly web savvy.
(Are we?) We do turn to
the web for in-depth information about our ailment, and one doesn’t have
to browse long to get the idea that flaking cybernauts print this stuff
out and accost their derms with it. And
that can’t hurt companies like Roche and Biogen who need derms to
prescribe their stuff. If all
the scammers, fly-by-nights and snake oil salespeople can reach us through
their web sites — they can, and do — I’m just tickled to death sites
like PsoriasisSupport will crop up in the same web searches.
Quick example. Go here
and just peruse the home page:
Now go here and
do the same thing:
Which site do
you find more compelling?
But let’s not forget Eric’s crediting NPF (National Psoriasis Foundation) in his email, above. Its in the last paragraph reproduced before my response. There is lots of redundancy between their sites. My take on it? Imitation is the sincerest form of flattery. Once again my favorite organization should feel flattered. -Ed