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Remicade Still Working After 4
Ed: It's now been 4 years since my initial email to you regarding my Remicade success and almost a year and a half since my last update. It's hard to believe that I've been on Remicade this long... and it still works! My doc has told me that some of his patients have developed resistance to the drug, and I'm thankful that I'm not one of them. Due to yet another job change my doc and I have convinced yet another insurance company to pick-up the tab for my Remicade treatment. But get this, for whatever reason my insurance company did not want to deal with the infusion center through which my doc currently works (something about not being able to control the cost of the drug through the hospital pharmacy's current supplier — whatever, not important). So, their solution? They ship the drug on ice to my house and then send a nurse to my house to administer the IV. How this is cheaper than using the infusion center is beyond me — but talk about convenient.
As for the condition of my skin — 99% plaque-free as I have been since those initial 3 infusions. Although, I have figured out that I can't go much longer than 10 weeks between infusions. Longer than 10 weeks and I start to break out again. Oh, and still no side-effects. I don't get colds or any other infections anymore often than anyone else, I don't think. However, I did get the flu-shot this year as a precaution — more because I have 9-month old at home than for my own well being. Anyway, that's my update. Thanks again for maintaining the site. Take Care.
Ed’s Response: Thanks for the update, Jay. Sounds like you are on your way to being a poster boy for biologic drugs. Four years is definitely on the senior side for psoriatic use of biologics. Some of the biologics have been used considerably longer for other ailments (chiefly rheumatoid arthritis) so we’ve all heard the pitch that “biologics are forever.” That means that unlike other systemic drugs, biologics are supposed to be effective enough, and safe enough, to take forever — like diabetics take insulin.
I, too, continue to add up stories from people who have found the biologics “wear out.” However, it will be several more years before we can draw anything like a reliable profile about long term performance of these drugs as a group.
With a little luck, you will be a part of that profile, Jay. Stay in touch! -Ed