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Working and More Convenient than Remicade
Hi Ed, here is
a quick update on my Onercept treatment in
injecting myself subcutaneously (under the skin) with Onercept —
Tuesdays, Thursdays and Saturdays — for over 2 months now.
According to the nurse on my regular visits, out of the 25 people
in the study, me and another guy are not experiencing any site reactions
to the needles. Strange, but anyway, she said I have the best clearing in
the study so far.
To give you an
idea, at the beginning of the study, I was 45%-55% covered with red,
painful lesions. Now they’ve
disappeared completely, except for minor scalp dryness and a the odd white
dry spots on my knees. The discolouration is mostly gone, but hasn’t
totally disappeared like it did with my Remicade treatment. My skin is
totally smooth and flat, feels like regular skin.
I didn't have
any side effects except for some swelling and numbness in my fingers for
about a week when in the Newfoundland cold (-5 C to -25 C) while on this
drug, and I was tested for Lupus just to make sure — the tests came back
perfectly fine so my derm and I wrote it off as my body adjusting to the
cold. Never happened again.
would definitely recommend this drug over Remicade, mainly because of the
three self-injections per week as opposed to hanging out at the derm's
office and missing work to be infused via IV for a few hours.
Onercept is a bit slower to take effect than Remicade, but that's a small
price to pay considering the convenience of do-it-yourself-needles.
NO MORE OIL BATHS and no
more TWICE A DAY VACUUMING! Good to be clear once again. I'll keep you
updated, especially when I finally stop taking the drug. -Scott M.
Response: Great job, Scott!
If a biologic can help you Newfoundlings (sorry, an indiscretion,
won’t be repeated) it’s got to be tough and therefore quite promising
for the rest of us. (Click
here for an article about Onercept trials.
Also search on ‘Onercept’ at the National
Psoriasis Foundation site for more information including
Onercept trials in the
you won’t be left high and dry after the trial.
I don’t know if Serono is considering Onercept the way Genetech
considers Raptiva — that is, as a drug you take forever because P is a
chronic disease — but if they are they may make available a program to
migrate you from a Phase III study subject to a long-term use study
subject. Something to check
Keep us informed. -Ed