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I am on this web site reading everything I can on methotrexate.
I do not have P but I have been diagnosed with amyopathic
dermatomyositis where there are virtually no websites since it only occurs
in about 1 in 5-million people. I
have severe cutaneous problems similar to P but none of the other even
worse things associated with myositis.
horribly to Plaquenil and did a test dose of MTX this week without a
problem. I lost most of my
hair with the flare of the disease after the Plaquenil reaction.
I am now terrified of MTX. I
cannot afford to lose one more hair on my head as I have had a hair
replacement system made that requires some hair left on my head to hang on
Dermatologist is very positive and has extensive treatment experience with
P and MTX. Almost all have
done well. He also uses
Cyclosporine, but we opted for MTX first.
I could use some encouragement from anyone about anything.
My cutaneous symptoms are very similar.
I find myself laughing for the first
[Later:] Hi Ed
again! I just saw the email
from Diane in Indiana [P or
Dermatomyositis: Big Difference].
The good news for her son [Travis] is that children tend to fare
better than adults. I count my
blessings that I have no muscle involvement and have not developed one
little elevated enzyme yet to indicate it.
The skin stuff is overwhelming though.
The stories I could tell! –Katrina
Response: Welcome aboard,
Katrina. As you probably know
from your searches here on “methotrexate,” we’ve had a lot to say
over the years! Unfortunately
we have archived some reports on hair loss during MTX therapy and that
can’t have been encouraging to you; however, your derm sounds on
top of it. At the first
hint that a few too many strands are taking leave of your scalp, you and
your derm may be able to switch to something else quickly.
(If my experience with MTX is an indication, the drug does nothing fast. For me,
it’s been like digging out a swimming pool with a teaspoon. But don’t
plan on a similarly slow response. Pay
attention from day 1! Better
to be bored than bushwhacked!)
informed about how things progress under MTX.