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Break-Outs and Hair Loss Undermine Sex Appeal
I have been
suffering with psoriasis for 18 years.
The first time I broke out I was only 15 and I was exposed to
chicken pox. For three months
I was covered from head to toe. I
can't remember everything the doctor did.
I know I had a great tan that summer.
The next time I
broke out I was 28 and expecting my first baby.
That was a very scary time for me because there’s not much they
can give you when you are pregnant. I
was covered from head to toe again. An older doctor sent me to the beach
and had me put Argo Starch in my bath. Two weeks later, after I started
this routine, it was all gone. I was amazed. I would get it on my elbow
and knees and I could deal with that.
Then in August
1998 my husband was facing a major heart problem — he had strep that had
attacked his heart — and the stress of the news that he might not make
it sent my skin into overdrive. I
watched my skin break out, in a single day, from head to toe again.
happened and my husband overcame his trial, but I am still suffering from
my problem. I can't be my
self, I hate being covered up all the time. Trying to make a romantic
evening is very hard. My husband is very supportive. I
used methotrexate and for some reason my hair all fell out. I feel
hopeless that I will ever get back to myself.
I would just like to feel sexy and be able to put on those little
nighties — lol!
thank you for letting me share a little of my feelings. -Liddy
Response: I have read
about and received correspondence from a few flakers who literally break
out over night. As if this
weren’t hideous enough, some of them break out in erythrodermic (full
body) P, which may be your case. Some
literature says patients with erythrodermic P may experience “extreme
discomfort.” (That’s a euphemism for it
hurts like hell.)
heard about bathing in Argo Starch until you brought it up.
Then I looked it up in the National
Psoriasis Foundation book, The
Best of It Works for Me (1991-1999), and there on page 53 was another
reference. This correspondent
wrote that s/he put 1 cup in the bath and soaked for 15 minutes twice a
while taking methotrexate isn’t unheard of.
See Who’s Lost His hair Using
Methotrexate? and Hair Loss on
Methotrexate in the FlakeHQ archives.
I haven’t heard a satisfactory explanation for why some people
react to MTX this way. As the
one male surviving on either side of my family that has retained a full
head of hair past the age of 35, I’m loathe to join my cousins via any
medicinal routine. That is to
say, if MTX made my hair fall out, I’d be looking aggressively for an
Has your derm
said anything to you about Soriatane (a.k.a. Acitretin) ?
It is another systemic drug that many flakers use as an alternative
to methotrexate. Go
here to read what WebMD has to say about Acitretin.
I’ve not tried it myself, but was gearing up to make the switch
this Spring. I’ll probably
make the switch to Soriatane unless I can get on the list for Enbrel, a
new biologic compound taken weekly through subcutaneous injections.
(Actually, two hurdles: getting on the list to receive the drug and
getting my insurance carrier to cover it.)
The long of it,
Liddy: Don’t feel hopeless.
There are things yet to try and new things on the horizon.
In the meantime, if romantic evenings with skimpy nighties seem out
of reach for you, do some brainstorming with your lucky husband.
I’ll bet you can come up with alternatives that will make you
Good luck and
stay in touch. -Ed