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|Narrowband UVB in British Columbia
from Carol S.
Dear Ed: I just found your site today. I have suffered with Palmer Pustular P, hands and feet, for over twenty-five years now. I must say it was only 15 years ago that a derm finally recognized what it is. I think I have tried every topical cream on the derms list, and the creams score 0, the PPP scores 1000!
For the past two and a half years I have been an out-patient (five days a week) at the Victoria Psoriasis Clinic in Victoria, British Columbia. I have used a combination of UVB, coal tar, anthralin and either Ultravate or Elacom. Results, well the P is not getting any worse and I don't have to soak my socks off at night any more.
Last spring we tried MTX. Just when there was slight improvement the liver enzyme tests came back elevated, so that was the end of that. I said "Goodbye" to all the winter regulars as they left hoping to join them in summer remission camp. As they returned in the fall I smiled as they greeted me with, "Are you still here?" Hey somebody has to keep the nurse company. They don't let me talk to new patients any more. I've been on this cycle so long I'm depressing. When they moved the clinic to a new location they offered to put me in a box and send me over with the rest of the furniture.
Two weeks ago our new narrowband UVB light booth was installed. So we are now trying the narrowband B. Unfortunately there doesn't seem to be a lot of info on the results of treating hands and feet with narrowband B. I'd really appreciate any info you might have about this. Please let it be negative, for some reason anything positive for other sufferer does less than nothing for me.
I really shouldn't complain. What's hands, feet, and elbows? Maybe 5% of your body? Compared to most flakers I'm in pretty good shape. Andheyit gets you out of doing the wet work.
Thanks for having a place for all us flaky people to find good info, good advice, and a good laugh. Good luck with the MTX. Be well, -Carol S.
Eds Response: Thanks for writing, Carol ... and sharing the chuckles. For the benefit of all, theres a dozen grotesque pictures of Palmer Pustular P in the Dermatology Online Atlas. Click on any of the thumbnails there to blow up the photo. I have PPP, too. It seems to wax and wane on its own schedule, independent of the plaque P, and when it wanes it stays away for a long time. Of the assorted Ps that plague me, Palmer Pustular seems most linked to changes in weather. Predictably, Ill get a flare in the palms of my hands and on the soles of my feet in the fall.
This past fall being the exception, because the methotrexate was working well.
Why in the world, Carol, did it take 10 years for the doctors to diagnose you correctly? Its not like PPP is a new thing! I just hope those manifesting for the first time today in British Columbia will fare better.
Ive heard scant little about narrowband UVB. Our National Psoriasis Foundation did mention it in one of their publications but, so far, its not showing up at their web site (www.psoriasis.org). You may find Narrowband UVB is My Miracle in the Archives interesting.
So, Carole, you have a hole to fill: our dearth of information about narrowband UVB. Here at FlakeHQ, wed much rather hear about it from people who are using it. (Angstroms, Joules and such are fun for some, but heres where you come to tell us how the hell it makes you feel.) Your turn. -Ed