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(Pityriasis rubra pilaris) Online
I have recently noted that FlakeHQ sometimes hears from people who
learn they have PRP (Pityriasis
rubra pilaris). There may
be some lack of understanding, but it is believed that Psoriasis and PRP
are different diseases.
purpose in contacting you is to alert or remind you about a PRP on-line
Support Group. It is uniquely
prepared to assist with information and support.
is often misdiagnosed during early phases and we know that Psoriasis is
often suspected first, prior to a correct diagnosis.
make certain that members of your site know we are a PRP resource.
In addition, please contact me about any specific PRP information
needs. I shall try to be of
assistance. -Richard Greene
Home Page: http://www.prp-support.org
Bibliography and Support Group Research: http://astro.temple.edu/~rgreene/prp
Ed’s Response: Thanks for this information and the links, Richard. I intend to add the PRP Support Group link to "Other Places" at FlakeHQ in the Jan-Feb 2005 update. Anything we can do to help both P-flakers and PRP-flakers get correct diagnoses is warranted. -Ed