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Soriatane His “Cause” Not
Thanks for your answers to my comments.
At the time I wrote that email I was really struggling with my
treatment. My derm took me off
soriatane after 9 1/2 weeks because my cholesterol was climbing steadily
way above normal and has been a risk factor in my family forever.
If I may report
on my progress after being off the drug for a week.
I have come out of a fog and have considerably more energy.
My skin is probably 80% clear except for my feet which continue to
hurt (but not as much). My
hair has thinned a bit, my fingertips hurt and my testicles are starting
to re-appear (this side effect was a big surprise!).
Of note is the fact that I am very sticky and feel like I can climb
a wall like Spiderman. Very
that, I hope to have a beer at Christmas.
I have some
phototherapy scheduled for January and in the meantime I will spot treat
and try to heal my body. Knowing
what I know now I would use the drug again provided I had my cholesterol
under control. The side
effects were devastating but will be worth it because I am mostly clear
and I can manage the P I have left. My
wife is glad to have me back.
I am grateful
to you for maintaining your site. I
found the sheer desperation and total support I needed to see me through
my therapy. Thank you and God
bless. Keep up the good work.
I will be a regular visitor. -John D.
Response: Thanks for the
follow-up, John. Soriatane
just may be my next “experiment” since it looks like I’m not a
likely candidate for more biologics in the immediate future.
It’s the only systemic I’ve not used.
Frankly, I’ve heard so many horror stories about its side effects
that I’ve avoided it for several years.
as reported in your November email, was among the worst.
So, it means a lot to hear you say, now, “Knowing what I know
now, I would use the drug again provided I had my cholesterol under
control.” When it comes time
for me to look my derm in the eye and say, “Bring on the Soriatane,” I
will be saying to myself, “John survived and said he’d do it again, so
I must try, too.”