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for Raptiva after Good Amevive Experience
I just thought I would tell you what I know so far. Through my
insurance Raptiva is about $300 for 30 days, retail. That is for the kit,
(needles, swabs, all the cheap stuff you need that they can charge
quadruple for). I want to try it, I really want it to work.
I also took
Amevive this summer, every week, for 12 weeks and along with that I had a
weekly blood test. The blood test was different from a CBC so I had to
wait for "special vials" to be ordered. I got really close to
clear. I've got guttate,
scalp, and plaque, more or less here there and everywhere. The thing I
thought I would share was instead of going through my prescription plan we
went through my medical insurance and they covered it. I only had to pay
My last shot
was in August and I am now relapsing (about 2 weeks now) BUT it is slow
coming back not like with methotrexate, PUVA, or UVB, or those ridiculous
creams. Usually when I relapse I itch really bad but that doesn't seem to
be the case yet...
Thank you for
your website, I am a 33 yr old mother of 3, I begin with P at age 8,
experienced a remission, then got a "spot" at 16.
Over the years slowly getting more and more, mostly just plaque on
knees and elbows. But since my last child was born 7 years ago it’s gone
wild. My plaque brought it's friend guttate and they invited scalp P over
and, altogether, they’re partying on me just about everywhere, now.
I enjoy the
"Don't Say This" page at FlakeHQ. It
helps me realize how lucky I am to have a very supportive family and
keeping us all posted on the latest, it is the hope that keeps the spirits
Have a fabulous
holiday season, -Chris K.
Response: Thanks, Chris, for
responding to my call for information regarding the cost of Raptiva.
At about the same time I received your email I found a page at the
National Psoriasis Foundation web site (click
here) that says a regular
course of Raptiva over a period of one year will cost about $14,000.
Doing the math, it appears your insurance is covering about 75% of
the total cost. ($300/mo X 12
mos = $3,600/$14,000 = .257: portion
I sucked up
your post-Amevive report with relish, Chris.
We’ve all be wondering about relapses (how soon? how dramatic)
and, as your email was dated in December and you said you stopped therapy
in August, that’s four months, give or take.
I’ve only got one word that describes that long of a remission
— and that UNdramatic a rebound: Whoopee!
Those of you
who have been riding the fence about trying a biologic, remember this
report from Chris. I’ve not
had a single drug — nothing — that allowed me to stay nearly clear for
up to four months beyond my last dose.
This is great news. -Ed