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May Have Saved a Career
First of all, good site. Like everyone else, it’s nice to know
that you’re not alone.
I’m a 47 year
old male. Have had Plaque P since `98. Mostly on my front and back torso,
upper arms and scalp, and a couple spots on my upper leg and knees. I’m
an entertainer (piano player/singer) and I live in Florida. I feel
fortunate that it’s mostly on places that you can’t see. I can wear
shorts but I don’t like to take my shirt off in public (though I will at
an out of the way spot at the beach).
couple years ago I developed nail P and through my own research figured PA
was not far behind. Unfortunately, I was right. My nails got badly
disfigured to the point of compromising my piano playing. And the PA
kicked in with a vengeance. I had problems with almost all my joints.
Knees and shoulders were the worst. But it also affected my fingers and
toes, hips, neck and upper back. I was in a lot of pain and scared that I
was gonna be in a wheelchair by 50.
Now the good
news. My derm told me I may be suffering needlessly and sent me to a
Rheumy. This was around summer of 2002. The first drug to be discussed was
MTX (methotrexate). Being in my business, I’ve done my share of drinking
so this option wasn’t considered. I was glad ‘cause it sounds pretty
discussed Remicade. In the workup for Remicade it was discovered that I
had Hepatitis C, so for reasons I’m not sure of, Remicade was ruled out.
In the meantime
(this all took awhile along with some health insurance runaround), Enbrel
became readily available in the U.S. I
started on Enbrel in April ‘03. Two 25 mg injections a week. I was told
to expect 2 to 6 months for good results. My knee pain went away the first
day! Within 2 months the swelling was gone in all my joints and my nails
were returning to normal. My skin is improving, but it’s a much slower
progress. But I can see the difference.
I’m still on
it and probably will be who knows how long. I still have P on my skin,
although it is better. My nails are all the way back to normal. It
hasn’t fixed everything, but my PA is a thing of the past. My life is
Will send a
line from time to time to let you know how I`m doing. PA sufferers, there
Sunny Florida, -Tony B
Response: Indeed, Tony, you’ve got something new to sing about!
It makes me very happy to read stories like yours.
My delight over your story is compounded because it’s not just
the fact that you were able to overcome P and PA using a drug that should
be much safer than the alternative systemics (like MTX), but in a very
real sense you also managed to save a career.
In contrast, if you haven’t already, read Worsening
P Threatens Career in the archives.
This letter, submitted by a girlfriend of a classical musician who
had severe P was written in 1999, nearly four years before biologics were
an option. We’ve come a long
I hope you will stay in touch as your Enbrel therapy continues. -Ed