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Eager to Start Amevive (and FlakeHQ email problem)
from Nikki

Hi Ed!  I am so happy to have found your website (actually my husband found it for me, he is my biggest supporter and helpmate in my psoriasis fight).  I am 31 and have had psoriasis since I was 11.  I am waiting for the pharmacy to ship my first injection of Amevive to my Doctor and I can't wait to get started! 

I will be curious to see how it helps you and I will let you know how it helps me!  I have had 3 children and experienced periods of remission in all 3!  I do agree with you that blood work should be checked weekly to be sure you being safe during treatment!  Thanks again! -Nikki

P.S.  Some of the links on your site link to a worldnet.att.net  address for you that doesn't seem be working anymore?

*****

Ed’s Response:  Thanks for pointing out the email links problem, Nikki.  Let me explain for your benefit and others.  All email archived here before this update (archives through Nov, 2003) contain a “send mail” link in the navigation bar at the top of the screen that contains a no longer valid email address for me.  The old one, as you mentioned, is [email protected]   When I finally graduated to a high speed cable internet service I dropped the AT&T service.  My new email is [email protected]. 

I need to find a tool or process that will go through 2,042 individual web files (about 7.84 mbs of data) and automatically replace the old links with the new.  I haven’t found such a tool, yet.  If anybody can help me out with this, please drop me a line!

In the meantime, the “send mail” link is correct on any page that bears a date of Jan-Feb ’04 or later.

Now, with regard to your imminent course of Amevive, I wish you the best.  If you’ve read this month’s Briefing, you’ve heard my sad news.  Abnormally low CD4 counts are preventing me from starting the treatment.  My CD4 count right now is so low — 111, whereas 250 is the bottom end of the “normal” range — that there’s some question about whether or not the biologics will ever work for me.  Since they modify the functions of selected white blood cells (CD4 in the case of Amevive), and in so doing “arrest” the growth of P lesions, how do you explain the severe outbreak of P lesions (and P arthritis) in a patient that has so few of these to begin with? -Anyway, current focus is on trying to raise my lymphocyte count so I won’t be a target of opportunity for “opportunistic infections.”

But, my case notwithstanding, please do keep us apprized of what happens to you as you go through your course of Amevive.  Your experience helps everybody else who is “riding the fence” about whether or not to try Amevive or another biologic.  -Ed

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