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to Start Amevive (and FlakeHQ email problem)
I am so happy to have found your website (actually my husband found
it for me, he is my biggest supporter and helpmate in my psoriasis fight).
I am 31 and have had psoriasis since I was 11.
I am waiting for the pharmacy to ship my first injection of Amevive
to my Doctor and I can't wait to get started!
I will be curious to
see how it helps you and I will let you know how it helps me!
I have had 3 children and experienced periods of remission in all
3! I do agree with you that
blood work should be checked weekly to be sure you being safe during
treatment! Thanks again!
Some of the links on your site link to a worldnet.att.net
address for you that doesn't seem be working anymore?
Thanks for pointing out the email links problem, Nikki.
Let me explain for your benefit and others.
All email archived here before this update (archives through Nov,
2003) contain a “send mail” link in the navigation bar at the top of
the screen that contains a no longer valid email address for me.
The old one, as you mentioned, is [email protected]
When I finally graduated to a high speed cable internet service I
dropped the AT&T service. My
new email is [email protected].
I need to find a tool
or process that will go through 2,042 individual web files (about 7.84 mbs
of data) and automatically replace the old links with the new.
I haven’t found such a tool, yet.
If anybody can help me out with this, please drop me a line!
In the meantime, the
“send mail” link is correct on any page that bears a date of Jan-Feb
’04 or later.
Now, with regard to
your imminent course of Amevive, I wish you the best.
If you’ve read this month’s Briefing, you’ve heard my sad
news. Abnormally low CD4
counts are preventing me from starting the treatment.
My CD4 count right now is so low — 111, whereas 250 is the bottom
end of the “normal” range — that there’s some question about
whether or not the biologics will ever work for me.
Since they modify the functions of selected white blood cells (CD4
in the case of Amevive), and in so doing “arrest” the growth of P
lesions, how do you explain the severe outbreak of P lesions (and P
arthritis) in a patient that has so few of these to begin with?
-Anyway, current focus is on trying to raise my lymphocyte count so
I won’t be a target of opportunity for “opportunistic infections.”
But, my case
notwithstanding, please do keep us apprized of what happens to you as you
go through your course of Amevive. Your
experience helps everybody else who is “riding the fence” about
whether or not to try Amevive or another biologic.