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Well hello Ed.
What can I say except I am totally amazed at your site.
You have made a desperate woman laugh out loud today!
I am 30 years
old and have had P for 15 years and PA for 7.
I am currently pregnant with my third child and because of that, am
not on any treatment currently. I
have heard all the wonderful talk of P getting better with pregnancy due
to the slight suppression of the immune system, but for me it never went
that way. Mine always got
So, right now I
am in a flare with both my P and PA and am pretty miserable.
Having your wonderful site to look at and laughing with the other
"Flakers" today has made me feel so much better.
So, I guess I am writing you to thank you very much for all you do.
I am spending a lot of time right now researching, trying to learn
more and educate myself further on treatment plans while I await the baby
(even though I find, now after 15 years living with the disease, that I
know more than most docs of all specialties including derms, and rheumies).
Thanks again, -Tamara
Response: You’re most
welcome, Tamara. I hope you
keep visiting and keep finding things that make you laugh.
I know what you
mean about docs and feeling we know as much or more than they.
I went to a few derms before I settled on the one I have now, and
two of the reasons I’ve stayed with this group are:
(1) when they don’t know they say so and (2) tell me how they
intend to reach out and discover the answer we’re looking for.
I know they’re sincere about research on my behalf.
They’ve sent me emails with some of the research results attached
— including snippets of chat room transcripts where they’ve posed our
question to a group of derms from around the country.
One of the
things I’ve always wished I could do here at FlakeHQ is interview a new,
well-liked derm for each update. I’ve
received a lot of email from people praising their derms — and it’s
usually for reasons similar to why I praise mine: a willingness to go find
What I’ve come to look for in a derm — any derm, whether they’ll be treating me or not — is the following:
Stay in touch, Tamara. -Ed